We are so glad that you found our website and hope that Thomas' story and his journey with craniosynostosis will provide you with the information and support that you are looking for.
On June 4, 2009, Thomas was suspected to have craniosynostosis and referred to a pediatric neurosurgeon. This was the first day of our journey and the nightmare that we would face. Please take the time to read our story and contact me at any time. I am here to provide you with support and hopefully with the information you are looking for. Also, please be sure to check back with us from time to time in order to read the recent posts and see what we have been up to.
Thank you and lots of love,
Cybill Phelan, a very proud Cranio Mommy!